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Axonal Guillan Barre (AMAN) - GBS\|CIDP Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
Average time for full recovery? - GBS\|CIDP So anything is possible There may be an average period of recovery of the motor nerves for GBS sufferers which is less than 2 years, but for muscle recovery, I think that the average recovery for those who had severe GBS, the average recovery period must be several years
GBS-chance of recurrence - GBS|CIDP Foundation International Forums I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
memory loss - GBS|CIDP Foundation International Forums With the gbs, I ‘v ehad to reprogram meyself to talk again, to read again, to think things out in order again, to spell, and correct errors, to read in a straight line, because my eyes jumple the letters around now I used ot have almost perfect reading writing spelling skils, but now it’s pretty bad, expecislly whne tired
Recomendations for Dental Work - GBS\|CIDP Hello, I am post GBS two and a half years Still have fatigue, and pain mostly in feet and legs I am scheuled for some dental work to replace an old cavity Are there dangers I should be aware of before I have this procedure done? My regular Dentist is out with cancer and I will be seeing a new dentist at his practice for this What should I make them aware of or what should I research before
Vitamins and supplements for CIDP - GBS|CIDP Foundation International . . . Just like GBS the attack can be mild or severe Severe attacks sometimes leaves that person with nerve damage the rest of their lives with some improvements but not 100 percent back to normal And then some get completely normal again! Just depends on the person and how severe they got!
Effects of GBS over 2 years later Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
Who Has the BEST CIDP Doctor and Where???? - GBS|CIDP Foundation . . . Word of mouth is the best way to accomplish lots of things I am looking for an alternate CIDP doctor I am willing to Fly but Prefer NE USA Looking for a take action type doctor that is highly skilled with treatment regiment for CIDP A doctor that does not give up and takes a high level of personal interest in the treatment of their patients Who is your Doctor and why do you like Him or