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- GBS-chance of recurrence - GBS|CIDP Foundation International Forums
I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
- Axonal Guillan Barre (AMAN) - GBS\|CIDP
Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
- Community Forums - GBS|CIDP Foundation International Forums
A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
- Effects of GBS over 2 years later
Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
- Average time for full recovery? - GBS\|CIDP
So anything is possible There may be an average period of recovery of the motor nerves for GBS sufferers which is less than 2 years, but for muscle recovery, I think that the average recovery for those who had severe GBS, the average recovery period must be several years
- Dental Procedures After GBS
Hi John My wife began GBS Apr 2018 and is recovering… she has just started being able to walk with a cane sometimes in place of walker Yesterday our dentist told here she needs a tooth extracted She is scared that this will result in a relapse of GBS So can you let us know how your dental work went please… was it OK (if an extraction is ever ok that is:)) thanks Dave
- For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
- Family, Friends and Caregivers - GBS\|CIDP
From a Wife of a GBS Patient by HsiaoChen Pan last updated 7 years ago 7 Replies
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