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GBS-chance of recurrence - GBS|CIDP Foundation International Forums I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
Effects of GBS over 2 years later Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
Axonal Guillan Barre (AMAN) - GBS\|CIDP Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
electric muscle stimulation? - GBS|CIDP Foundation International Forums I have just completed a research project which used “W-Wave” electronic stimulation to evaluate its effect on calf muscle strength This particular device is used by many high profile athletes to speed recovery from injury The theory is that the device improves blood flow I used the device twice a week after working out at the YMCA One electrode under the arch and one electrode behind
For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
Flare Up at 6 months post GBS diagnosis - GBS\|CIDP I was admitted on October 6, 2016 with advanced GBS I spent 4 weeks in ICU on a ventilator receiving IVIG during that time and then an additional 4 weeks in rehabilitation hospitals before returning home for outpatient therapy The 6th of April was 6 months since I was admitted About 4 days ago (April 11) I started to struggle with tingling in my feet again It has since spread up to my
Oregon City a GBS Cluster? Because GBS isn’t supposed to occur in clusters this is pretty strange, at first glance When I talked with the lady from CDC, she said Oregon City has a pretty strange looking cluster of GBS as well as a whole host of other odd health problems including Polio, measles, mumps and Scarlet Fever
Cellcept and Cidp - GBS|CIDP Foundation International Forums Also, if your dr thought you had GBS he should NOT have put you on steroids Often times GBS ‘roids do not mix ‘roids tend to make GBS’ers worse Maybe you could call the GBS CIDP Foundation ask if they know of any dr’s in your area who are familiar with CIDP