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Spina Bifida Association We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida Advocacy We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care
Adults - Spina Bifida Association The number of adults with Spina Bifida continues to grow About half of people living with Spina Bifida in the United States are adults For many years, the medical community has focused on providing care for children and offers many children’s clinics throughout the country
What is Spina Bifida? Resources and Prevention - Spina Bifida Association Spina Bifida is the most common permanently disabling birth defect that is associated with life Approximately 166,000 individuals in the United States have Spina Bifida It’s a type of neural tube defect (NTD) that occurs when a baby’s neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine ”
National Resource Center - Spina Bifida Association SBA’s National Resource Center is the only service in the United States exclusively dedicated to addressing your questions about living with Spina Bifida The National Resource Center offers help in English and Spanish, and can help you: Find the closest SBA Chapter or support community; Identify the nearest Spina Bifida clinic or center of care
Chapters - Spina Bifida Association VERMONT – SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND Serving Maine, Massachusetts, New Hampshire, Rhode Island, Connecticut and Vermont Executive Director: Jean Bertschmann P O Box 681 Natick, MA 01760 888-479-1900
Clinic Care Partner - Spina Bifida Association The Spina Bifida Association (SBA) Clinic Care Partner program is an initiative that stems from the existing Spina Bifida Collaborative Care Network (SBCCN), a program that works to identify the needs of people with Spina Bifida, connect with health care providers, identify clinics with the best outcomes, and identify research priorities
Connect - Spina Bifida Association 2025 Spina Bifida Clinical Care Meeting | June 6-7, 2025 Walk-N-Roll for Spina Bifida Volunteer Participate
What is Spina Bifida? - Spina Bifida Association Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States It's a type of neural tube defect (NTD) that occurs when a babies neural tube fails to develop or close properly - the literal meaning for Spina Bifida is "split spine"