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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
Atlanta recommendations - Ehlers-Danlos Syndromes - Inspire The Ehlers-Danlos Society has a great healthcare professionals directory that may be a good place to start looking for doctors familiar with HSD and EDS near you There are a few listed in Georgia, including a gastroenterologist and a massage therapist! People have also had success finding doctors through local support groups or Facebook groups
I found a hypermobile EDS doctor in Oklahoma City Fleak_eds Mar 6, 2024 • 9:18 AM Omg I live in OKC and have been looking for one! Thank you so much for this!! Game changer! I have been going to Florida for appts!
POTS doctors in Virginia Beach area - Ehlers-Danlos Syndromes - Inspire Dr Bhasin is at the aortic clinic in Chesapeake He specializes in Marfan and EDS and is thrilled to have a new EDS patient He moved my appt to only a week away after I made the appt for their "next available time" and spent a long time with me He is more of an aortic specialist and is looking for possible physical abnormalities than he was interested in treating the POTS though But that
Got my 23andme. What next? - Ehlers-Danlos Syndromes - Inspire Just like EDS, you have to look at expression as well as what other issues they have going on If they have other metabolic issues that can interplay with MTHFR, such as a vWB or other Factor issues, not to mention things like COMT activity, and CBS regulation, then you essentially have a whole other set of things to consider
Tampa FL EDS Doctors - Ehlers-Danlos Syndromes - Inspire Looking for doctors in the Tampa area that have experience with EDS and Common Variable Immune Deficiency I recently moved here and need to establish my medical team of PCP, Cardiologist, Immunologist, GYN Oncologist, Gastro, and Orthopedic Spine Specialist (specifically neck)