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Spinal CSF Leak - Inspire This Support Community connects patients, loved ones and caregivers affected by spinal cerebrospinal fluid (CSF) leaks for informational and social support The Spinal CSF Leak Foundation is a 501(c)(3) nonprofit health foundation focused on raising awareness, providing education, and funding research for spinal CSF leaks The content on the Spinal CSF Leak Foundation website is provided for
Signs of a CSF leak and no one will listen? : r CSFLeaks - Reddit NASAL FLUID While people with IIH and cranial (skull base) CSF leaks do often leak CSF from their nose, it's actually less commonly known that at least 12% of people with spinal CSF leaks also leak a watery fluid from their nose that is indistinguishable from CSF without lab testing but isn't CSF
How does caffeine help with CSF leaks - Spinal CSF leak - Inspire Its possible to increase csf pressure by laying flat on your back and possibly plugging up leak while alreaddy in compensatory overproduction This could hurt beyond anything ever experienced and you will stand up or try to sit down There was a mention of internal tremmors sometimes associated with caffeine or medication side effects
Substances that change CSF flow pressure - Spinal CSF leak Substances that increase CSF flow pressure This include substances that are injected, inhaled, physical elements that can influence the CSF flow pressure positively (increase) caffeine : the main stay substance that help Head and spine position relative to gravity ( effect can diminish with time) increase in fluid intake compression binder
What’s been your experience with a CSF leak? - Reddit Matches up with mine My neurologist is absolute SHITE and knows nothing about CSF leaks He admits I’ve got low pressure but I’ve been like this for 9 months Pain is all I know Trying to get a blood patch is proving impossible My MRI was showing normal so they seem to think it’s impossible to have a CSF leak with a normal MRI
Can I workout with a CSF leak? - Spinal CSF leak - Inspire Most spinal CSF leak specialists ask for a brain MRI with and without contrast as a first step to evaluate your imaging for subtle signs of a CSF leak This would be a great first step to take, if you can find a physician who will order it for you
Question is for people who already have CSF rhinorrhea or . . . - Reddit Question is for people who already have CSF rhinorrhea or Cranial CSF leak I want people who suspect CSF rhinorrhea to be able to better understand if they have the condition And so the questions are for people who already have CSF rhinorrhea: How do you feel when this fluid comes out of your nose?
Caring for Loves with CSF leaks - Spinal CSF leak - Inspire I asked my husband what thoughts he had for another spouse supporting someone with a spinal CSF leak The experience was really traumatic for him too, and he really benefitted from taking care of his own mental health and seeing a therapist both during and after my leaks, working through medical PTSD