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  • Vitamins and supplements for CIDP
    The MSM is for energy and pain, and the glucosamine is for joint health I think that there are several distinct forms of CIDP which require different treatment strategies However, I do believe that whatever helps remyelination in any body is worth trying for myself So I do a lot of reading on Multiple Sclerosis and HIV sites too
  • Cidp - GBS|CIDP Foundation International Forums
    CIDP is an auto-immune disease with antibodies attacking the myelin sheath around the nerves Monoclonal gammopathy just means there is an unusually high amount of only one kind of antibodies, known by the M spike on blood tests
  • Has anyone had normal protein levels in spinal fluid? - GBS\|CIDP
    It’s normal to have regular protein levels with CIDP, especially after having received an immuno-modulator My daughter has had 3 spinal taps 1st one her protein was 93, 2nd one it was 96, the 3rd one was 48
  • Community Forums - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • muscle cramping is cidp right?
    I have CIDP, and before being diagnosed I suffered leg cramps; usually when swimming After being diagnosed I was told the cramping was a symptom They stopped for a while after I began receiving IVIg infusions, but mysteriously started again when I was sleeping It was suggested to add a supplemental Vitamin E to my diet For me it seems to work
  • CIDP and facial mouth numbness
    My case of CIDP involved recurrent relapses of the left 6th nerve causing double vision and weakness of muscles around the left eye and involvement of the trigeminal nerve, on the left side, which gave me a numb jaw, and left side facial muscles, a numb tongue, and some slurred speech
  • CIDP and prednisone - GBS|CIDP Foundation International Forums
    I did NOT respond to prednisone and both the Lahey clinic in MA and the mayo have diagnosed me with cidp—while at mayo i had every test there was for the cidp—lumbar puncture, nerve biopsy
  • CIDP = Caused by the flu shot
    Hello Ron, my CIDP was definitely caused by the H1N1 flu shot i received in 2010 It was within 10 days of the shot that all my symptoms started up I had a very classic case of CIDP and was able to get diagnosed within 6 months and start IVIG so I didn’t have a lot of permanent damage to my nerves It was hard to convince my neurologist that the flu shot caused my CIDP but it was the timing




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