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- AXYS - The Association for X and Y Chromosome Variations
AXYS supports individuals and families affected by X Y chromosome variations through in-person and online groups that provide shared experiences, resources, and educational opportunities Browse a selection of open studies you can join to help advance X Y chromosome variation research
- AXYS Consensus Document Educational Guidelines IEPs School Services
Educational Guidelines, IEPs, and School Services for Children with X Y Chromosome Variations Consensus-based recommendations from the AXYS Clinic Research Consortium
- Klinefelter Syndrome: Identifying, characterizing and managing an . . .
The AXYS Clinic and Research Consortium helps independent multidisciplinary clinics dedicated to treating people with X and Y chromosome variations across the US to collaborate, share resources, meet to discuss important topics, and explore opportunities to participate in joint research projects
- Board and Staff - The Association for X and Y Chromosome Variations
AXYS Board of Directors and staff members are dedicated to the mission of AXYS and to our X and Y variation community While election to the board is an honor, members also have important legal and fiduciary responsibilities that require a commitment of time, skill and resources
- Support Groups and Regional Get Togethers - The Association for X and Y . . .
AXYS supports our community with in person and online groups These groups are facilitated by volunteers who schedule the programs and often arrange for speakers on topics of interest to individuals and families affected by X Y variations
- Resources Archives - The Association for X and Y Chromosome Variations
AXYS provides numerous resources for individuals with X and Y chromosome variations Find a clinic, a support group, or a medical professional near you Browse our extensive library of scholarly articles relating to XXY, XYY, Trisomy X, XXYY, and other variations
- ACRC Clinic Spotlight: MassGeneral Hospital Klinefelter Syndrome Clinic . . .
The MassGeneral Hospital Klinefelter Syndrome Clinic is the most recent addition to the ACRC (AXYS Clinic and Research Consortium) They offer care throughout the lifespan, from caring for those with a prenatal KS diagnosis to adults of all ages
- 47,XXY (Klinefelter) Archives - The Association for X and Y Chromosome . . .
Still, I struggled to find quality, condition-specific information until I found the AXYS Organization a year later Even then, locating competent providers who actually understood XXY and could offer impactful treatment and advice remained an uphill battle
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