- Home To Females Impacted By X-Linked Conditions - Remember The Girls
Remember The Girls runs a private Facebook group with over 1,300 members impacted by more than 40 X-linked conditions and from more than 30 countries in the world
- Remember The Girls - Facebook
At Remember The Girls, we offer resources, support, and a community of people who truly understand the challenges of living with an X-linked condition Whether you’re looking for answers or connection — we’re here for you Join us to learn more and connect with others on a similar journey
- Remember The Girls Launches ‘Rare Rewritten’ Advocacy Campaign Urging . . .
Remember The Girls, a 501(c)(3) non-profit organization dedicated to supporting females impacted by X-linked genetic conditions, today announced the launch o
- Remember The Girls - National Organization for Rare Disorders
Remember The Girls aims to break the stigma facing females impacted by X-linked conditions by providing them with tools to seek support, engage with research, and access family planning options, as well as by advocating for increased attention of medical professionals to the physical, emotional, and reproductive needs of this community
- Remember The Girls empowers women affected by X-linked conditions
Remember The Girls provides education on X-linked conditions, family planning resources, personal stories, access to research studies, and an online group where women can share their experiences
- Remember the Girls: Driving Awareness of Female Carriers of X-Linked . . .
She said one of the biggest problems facing female carriers of X-linked disorders is the persistent belief that women and girls cannot be affected by those conditions—and that only their male offspring can
- About Our Mission Goals - Remember The Girls
Learn about the goals, mission, and values of Remember The Girls, the only organization catering to females impacted by X-linked conditions
- Remember the Girls - Ultragenyx Patient Advocacy
Remember the Girls’ mission is to raise awareness of the many issues facing female carriers of x-linked recessive genetic disorders; to provide a forum for x-linked females to share their stories, ask questions, provide and receive emotional support, and develop friendships; and to advocate for increased attention of the medical community to
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